Cancer Update April 15

The view from my hotel room in Madison

Should I be writing updates when things are heavy and dark? Maybe that’s exactly when I should be writing updates.

I learned yesterday that a friend from college’s husband, who has stage 4 lung cancer with the EGFR 20 mutation (mine is EGFR 19) is not doing well and has moved into hospice. OMG, I keep thinking this is something I will move past, but it’s claiming people I know!

And some family members are really not doing well.

And more hair is falling out.

And my pet’s heads are falling off. 

(Sorry, that’s a Dumb and Dumber movie quote that my highschool friends and I used to reference incessantly)

The gravity of my situation has been feeling so heavy lately. This last round of chemo really got me for some reason. I’m much more nauseous that I’ve been since the first round and can’t walk as far…and I am still struggling to eat enough to keep my energy levels up.

Enough! Chin up!

I keep hearing positivity is the key, but do I have to be positive every freaking minute? Can I feel the weight of this and cry and rage every once in a while? Of course. There are no rules, but are there? There are so many books that I’ve been reading about how to live with cancer, how to eat with cancer, how to survive cancer, and there seem to be rules….but they are different for everyone, so we can’t tell you exactly what they are, but know that if you don’t follow them it won’t be good, or might not. We don’t really know why some people make it out and some don’t. So do the right thing, we just don’t know exactly what the right thing FOR YOU is, so figure it out.

Ahhhhhhhh!

I know my body is fighting. Is that why my hair is falling out now, and I have no appetite? Or is that the poison of chemo working its way through all the cells in my body? Or is that the cancer advancing?

How about some good news? I made it to Madison after spending all day sick in bed the day before my flight. I even looked at flying out a day or two later, but ticket prices were RIDICULOUS to reschedule, so I put on my big girl pants, packed a puke bag, and hoped for the best.

I had a delicious breakfast where I felt like a normal person. Normal!

And I made it. Travel day wasn’t too bad after all, and I had a wonderful dinner catching up with Jasmine. We laughed over the “turkey vultures” bit (see the last blog if you don’t know what I’m talking about) and remembered that it really was “pig vultures”. We were trying to get under our little brothers’ skin after all. “Pig Vultures!” we would screech as we peddled away down the country roads. They would circle and circle the intersection on their bmx bikes, hurling insults back at us as we laughed hysterically and coasted down the hill on our bikes, giddy with freedom.

Jasmine!

It was fun to tell stories, and apparently, we lived about a mile from the Ice Age Trail…I knew we were close, but not that close!!! A national scenic trail was evolving in my backyard and I didn’t even know it existed! It was designated as an NST in 1980, I was three, so yes, it was most definitely there. I have to hike it. I have to live long enough to hike it. And Jasmine’s mom still lives in the house I know so well, she can be my trail angel! She just doesn’t know it yet. In fact, I have a friend thru-hiking it right now, and he calls it a pub crawl, so maybe I can arrange for some of my gear to be transferred from town to town so I don’t have to carry much, and there isn’t much elevation gain, so maybe this is a trail I can hike in my cancer years?? 

Whitney and I went out for dinner with Luke last night, the executive director of the Ice Age Trail, and we talked a lot about it. That’s the magic of these trail conferences: you get to meet the people that do the thing! And that thing is trails, which I love so much!

Jasmine also told me that she remembered that I was very philosophical when I was growing up, and remembered lots of deep conversations that we had during sleepovers. While dealing with a bout of nausea in the hotel room yesterday, I did finish watching Wicked online, the prequel to the Wizard of Oz. Then I had to watch the Wizard of Oz of course, and was immediately reminded of its influence in my life growing up. 

Gotta love the saltines!!

Back then we just had a TV with a few channels. It was even before the VCR days. The Wizard of Oz would come on once a year around Easter (wait a minute….Easter is this week, in real life!). The story of a long walk, meeting kind strangers you ended up loving and having good and scary adventures with, must have planted the seed for what would become my thru-hiking life. That and the Ice Age Trail in my backyard (right by Fountain Lake where we spent sooooo many days swimming) and my dreamy philosophical nature.

Check out this map:

The x is where I lived, the circle is where Jasmine lived, and the + is where our other friend Katie lived. My freaking back yard!!!

I feel down, but then I start thinking about how many trails there are left to hike, how many places to see and people to meet, and I get excited again. And sure, I probably won’t be hiking the Hayduke Trail that I had planned to do in 2026, and the Great Divide Trail in 2027 for my 50th birthday, but there are plenty of other trails where I don’t have to carry 7 days of food and 8 liters of water on my back that can be added to my list.

I can do this, right? 

16 thoughts on “Cancer Update April 15

  1. You can do this, Renee.

    There is nothing written anywhere that says you can’t rage when you need to.

    And, as you well know, rules are made to be bent and broken and reformed in whatever pattern works for you.

    You can do this.

    Liked by 1 person

  2. The-Wizard-of-Oz-773x1024JPEG Image · 86 KBIt’s a buck dancer’s choice my friend/Better take my advice/You know all the rules by now/And the fire from the ice/Will you come with me?/Won’t you come with me?/Whoa-o wh

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  3. I believe in you! You are badass. You are beautiful. You made it to the conference and ate great food and felt the uplift of friends and trails–even if you felt crummy. And really–it’s so healthy to rail, rant, and call foul about all of this too. Sending love from Toledo, Oregon, where I am birdsitting two parrots, six lovebirds, and 13 chickens, plus spreading cracked corn by the slough for seven pairs of wood ducks, filling nectar feeders for rufous and Anna’s hummingbirds, and other feeders with sunflower seed and suet–and oh yes, writing! It’s a little haven. Wish I could whisk you here… Love, Marina

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  4. P.S. You’re inspiring me to rewatch the Wizard of Oz! Used to be our family tradition once a year–we had a black and white TV far longer than others and I was shocked when I finally saw the color in Oz!

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  5. Damn right you can do it. Look at all the amazing stuff you’ve done already.

    I’ve been e-mailing you questions about the ODT, and you’ve been e-mailing me answers and providing me with great information, and all this time I had no idea you were battling cancer. I happened on your blog by accident. I’ve heard you were an amazing resource about the trail and it was true. And doing all this when you’re sick. Wow. My heart goes out to you, She-ra. A big God Bless.

    Keep thinking about the Hayduke. If you imagine it, if you envision it, it will happen. Maybe not in 2026, but it will be there for you when you’re ready. You are awesome. Keep fighting, keep dreaming, keep believing in what you can do.

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