Cancer Update June 12

Look at these beautiful people!

The only constant is change.

I grew up listening to this song by the Scorpions, and it still brings a pang of longing and sadness, and is it hope? And I didn’t know the full undercurrents of the song at the time, but its wistful tone certainly resonated with me.

And I have been facing so much change recently, it’s hard to get my bearings. Especially in the month or so since the news of my promising scans…it seems I’m on the verge of seeing a life for myself again, but of course I’ve still been living a life…but you know what I mean. I’ve had to live in the present for the past six months, so much so that looking beyond the next week or few weeks just didn’t seem possible. But all this word salad is to say the only constant is change and I’m grateful that I’ve had such a secure base of loved ones that have provided enough stability that I can weather the winds of change with a bit of grace. It’s like I’m a blade of grass, blowing in the wind. Sometimes the wind is whipping me around, bending me almost to the ground and roughing me up, but you all keep me grounded, set in place, so that the wind can try and rip me up, but it can’t. My roots are too deep.

Woo, can you tell it’s 3am and I’m back in my early morning writing phase? 😄

I’m sure you are all eager to hear about the big birthday party bash…it was fabulous! I think almost 50 people came out to Amber’s place in Corvallis. People brought flowers and snacks, fresh strawberries from nearby farms, and so much joy. It was such a lovely gathering….even though something got to me. It might have been a bad sandwich, or the heat, or some pain I’ve been having in my left shoulder, but I vomited several times on Saturday and it aggravated my throat enough that I lost my voice, and it left me with barely a whisper. Really, it left me mostly listening to everyone around me chatting about adventures past, present, and future. And so much serendipity happened! Dr. Grant, a hiker I had met at the Cascade Ruck last year came, and just happened to be heading down to hike the Bigfoot Trail, and wouldn’t you know it, Fireweed, who is on the Bigfoot Trail board and was planning on giving her a ride to the trail was also up for the party and the two met for the first time. Dr. Grant even got a ride down from the party on Sunday to start hiking the trail. And Anne, Amber’s wife, connected with my good friend Sage when I remembered they were both from the same very small northern Californian town…so small that of course their paths had crossed many years ago when both lived there, yet they were meeting at the party, of all places, years later.

The magic of people, good people, is a big part of what is keeping me going. Such kind and generous people. Sue, a volunteer that I’ve had on a couple of ONDA volunteer trips, came as she lived in Corvallis, and wrote to me later and said “I knew no one, except you, when I showed up. Yet— I knew immediately this is “our community”.  You, your life, your work, brings out the good in people —- just like the mountains, the rivers, the oceans, as we traverse this earthly landscape.” That is just everything. My heart is full.

Sue!

So yes, I was sick and it lingered the next day, but we ate bagels and drank coffee in the shade of Amber and Anne’s giant sequoia tree in her yard, playing “move with the shade” as the morning sun shifted in the hot day. 

Nemo and Pouch (my PCT 2006 besties) won the award for having traveled the farthest…from upstate NY! Just for the weekend!

We called ourselves “Team Primary” in the North Cascades on the PCT because we were in blue, yellow, and red rain jackets half the time.

There were so many people I hadn’t seen in ages who came out. I couldn’t have asked for a better party. I hope to have many, many more. Some suggested it be an annual thing! Who wants to host next time?

And of course, Amber’s Nomadic Pizza was a huge hit. She and our friend Megan sweated for hours slinging pies for us in the hot, hot wood-fired food cart, and it was so delicious. (Amber can cater private events like my party…please book her if you have something coming up!)

The pizza guru, Amber

This week has been one full of doctor’s appointments and hanging with my little brother Dan. He just bought a new car and wanted to stretch its legs and see me too. Dan is in the Air Force based in San Antonio, so he drove three days up, arriving just in time to go out to dinner with Kirk and me on my actual birthday (Monday, June 9….the best day of the year!).

He took me to meet my new oncologist and to wrap up with my old one. He took me to get more labs done and along with another MRI. We took walks along the river and drove up to the mountains for an afternoon, too. It was a chill but wonderful visit. Thanks Dan!

Doing the tourist thing in Bend.

I have more appointments before I head out again to visit my parents next week. All three of my brothers will be down there too, so it will be another busy week. My dad’s Alzheimer’s is progressing, and his time is limited, so I’m glad we are all able to gather together.

So even though my prospects of health continue to improve, I’m still caught living in the moment, paying attention to each day as it comes. The peonies that I got for my birthday are a good reminder of that…each day they open a little more, changing ever so slightly, but changing, so that it’s worth stopping and appreciating them in each slight phase. Sure, I could think ahead to when they are dead and gone, but why do that when they are vibrant and alive and in front of me now? Enjoy them. Enjoy this. Enjoy the moment.

March 23 Cancer Update

Get ready for some neck.

I saw the neck surgeon this week to evaluate my collapsing C7 and look at my C4 three months post surgery, and I got the all clear! The doc said the C7 doesn’t have to be addressed, and that I can live with it (we didn’t talk about backpacking, I have a feeling a full-weighted backpack might paint a different picture). I then took some x rays which showed that my C4 is appropriately healed. So that means I can start taking my c-collar off. Get ready for some neck!

So the last few days I’ve been spending more time with it off, getting used to the weight of my head again. I’m practicing turning my head and nodding again, all things I haven’t been able to do for three months. A bulk of the work will come to play with my PT. I’m transitioning away from the in-home PT to an outpatient situation, and it’s like I’m graduating or something…I’m slowly being positioned to live without daily doctors appointments and check-ins. We are also looking at decreasing my meds…I’m already off the steroids and we are looking at the pain meds next. Am I in pain anymore? It’s hard to say. Are the meds masking pain or do I even have pain any more? I have discomfort for sure, but pain? 

All this is coming as I look at making my first trip to the trails summit in Wisconsin in three weeks. Can I be ready to walk around without my collar most of the day in three weeks? Can I have a glass of wine at a happy hour in three weeks? Can I sleep without an adjustable bed in three weeks? 

The rash is still rashing, but it’s not getting worse, I guess it’s clearing up, maybe a little?

I still feel the cancer in my spine and in my ribs. Is the tagresso doing it’s job? Maybe a little?

I’ve been sleeping a lot. Like half the day away, but again, I’m not fighting it. But I feel like I’m in a bit of a daze all the time. Sleeping so much puts a dream-like quality to everything. If I’m not myself right now it’s because I’m a dazed and dreamy version of myself. 

I’m struggling with the habit of productivity. I went on a walk with a friend yesterday and we talked a bit about it. She wondered if it was a mid-western quality…this need to always be moving some ball forward, even when dealing with stage 4 cancer. What am I trying to be productive about? Well, writing here for one, diving into my past for two, and putting out there that I want to write a book (Really! Sometimes that just seems insane), and then writing thank-you cards for everything. That it’s ok to let some or all of it go.  I know that it is, but the blog serves as a processing time as well, and it is keeping you all in my life, which I really need these days. 

I got a card from a stranger, a hiker that has been reading my blog for years but I’ve never met, and I needed to read that card that day. It made such a difference in my morale and mood. I need all of you in my life, so I want to be productive enough to update the blog to keep you all informed and close. I need all of you. 

I got another card recently from a volunteer that came on one of my trail work trips last year. I only met her that one time, and she wrote the most beautiful card with gifts of song and book recommendations. I love that, that kind of thing fuels my day, and I’m thrilled to add to my reading list too 🙂

So all of this to say, I don’t know where my need to be productive comes from, but I don’t want to give up the need to write, and sure maybe I’ll stitch some of this together into something that could be called a book, but I do want to give up the idea that I’m going to come out the other side of this looking for a publisher. I want to give myself time to just be. And right now that looks like a lot of sleeping. Not as much reading as I’d like (reading puts me to sleep right now), but I’m just going to let it be and not fight against it. 

You will probably have to remind me of that from time to time! 

March 20 Cancer Update

I was doing this last March 20…section hiking the Idaho Centennial Trail.

It’s the first day of Spring. Lets do this.

I’m ready for some change.

In all honesty, I’ve seen a lot of change this week. For one, I’ve been sleeping! Something flipped last weekend and suddenly I was sleeping most of the night and sleeping throughout the day. I couldn’t sleep enough. I was in a dis-combubulated haze of sleep for a few days there, and didn’t fight it. I don’t know if it was transitioning from Trazodone to Magnesium Glycinate and a sleep THC/CBD tincture, or maybe it was decreasing the steroid I was taking, or maybe it was my body saying, “enough,” but it was time.

I’ve also been seeing changes in the form of some of those side-effects from my new mutation drug, Tagrisso. There was a line about adult acne in the list of side effects, and a few days ago my legs erupted in a red rash of something. It’s not really itchy, but it looks bad. Real bad. I had a consult with the docs this week and they prescribed a steroid cream for it, and my acupuncturist suggested drinking celery juice for it’s anti-inflammatory and cooling qualities (Note: for those of you suffering from high blood pressure, try some celery juice!) I fully believe that food is medicine, and hope to be learning more and incorporating more food medicines through this journey of mine.

What else has been going on? Oh it’s winter again, or it was for a while this weekend. Snow and ice have covered the ground and curtailed some of my daily walks…I think that has added to my malaise.

And I’ve lost my taste for coffee…I’ve gone several days without it, which is very odd. Oh and my stomach is a mess. I can’t seem to digest anything.

So in general I’ve been living in a foggy state of existence this week. I’m not sure if I’m snapping out of it? I woke up at 1am this morning and got up, so we’ll see. 

You all continue to send me exciting books. I’m eager to read some of the new arrivals: Between Two Kingdoms, Wind, Sand and Stars, and My Journey to Lhasa. One that I’ve been working on for a while now and am almost done with is The Mission Walker. I’m really in the mood for good adventure books.

As for shows, Kirk and I just finished season 1 of Severance, and just started season 2. Go Mark and the Innies!

In general all the changes seem to be not so productive. I haven’t seen a big difference in my pain levels, in the feeling in my spine and ribs. I hope the new med is working, but I guess we won’t know for a while. At least I don’t feel like the cancer has changed course since I started Tagrisso, but who knows.

I don’t think I’m going to deep dive into past stories today. Not feeling it. 

Instead I’ll open one of those books and read until my eyes can’t stay open and then go to bed again. 

Peace out.