Life Update 8/21

I returned to PCT Days last weekend….things started going wrong just after PCT Days last year…I’m still chairing the Oregon Trails Coalition, so was helping to spread the Fund Trails message with my friend Matt Ruddy from Trailkeepers of Oregon. Speaking of…we are collecting trail stories from people all across Oregon as part of a campaign to celebrate the many ways trails show up in our lives—and why they deserve ongoing public funding and support. What’s your trail story?

I know I’ll be feeling the echoes of my Dad’s passing for quite a while, and paired with my healing journey, it’s even more of an imperative to get out on the camino to walk out a lot of these emotions. Walking is the way I process the world, walking and writing together are the ultimate…so I’m excited that I have both on the horizon.

Back to the world of cancer stuff, I’m on the maintenance schedule now that includes monthly labs and meetings with my oncologist. I got my labs done this week and it still shows low white blood cell counts and low platelets…these are side effects of my daily cancer med, so it’s to be expected, but it also means that my immune system isn’t as robust in defending my system from infection, but I started a new treatment regimine this week, prescribed by my naturopath oncologist: Mistletoe! 

Yep, it’s the christmas kissing plant, or in my case, an immune cell super-power upgrade. Here is what mistletoe will do for me: 

  • Help my immune system to recognize and destroy tumor cells by activating tumor-killing cells such as macrophages, dendritic cells and natural killer cells. As cancer progresses, cancer cells mask themselves from the immune system by hiding their cell markers. Mistletoe helps to reverse this progress, exposing cancer cells to the immune system.
  • Blocks the ability of cancer cells to build new blood vessels 
  • Repairs DNA of cancer cells, making them less aggressive
  • Damages cancer cells’ cell membranes and structure
  • Promotes immune destruction of cancer cells
  • Blocks production of proteins that promote growth in cancer cells
  • Blocks ability of cancer cells to invade new tissues
  • Anti-inflammatory, modulates pain response

The fun part? Giving myself shots. The treatment comes in self-administered injections several times a week, and since the medication doesn’t have to be refrigerated, it should be all good to take to Europe with me in a few weeks.

So I have this new med, and when I return from Portugal, I’ll start another new med, Zometa, which is an infusion that I’ll get every three months to strengthen my bones. The internet tells me that Zometa is a bisphosphonate medicine that alters bone formation and breakdown in the body. This can slow bone loss and may help prevent bone fractures. So this will help me recover from the swiss cheese effect of the cancer growth on my bones, and it will be doubly useful because I am hovering around menopause, which also can lead to osteoporosis. I’ve been advised to avoid high-impact activities because of my increased fracture risk, and not that I’m going to suddenly start racing motocross or anything, but I’m hopeful this will lessen the risk if I do try things this winter like cross-country skiing. I’m probably still going to avoid downhill skiing for now (sob).

So even though I don’t have any active cancer, I’m still seeing doctors like it’s my job. Maybe this will lessen with time? Maybe? Because I’m on monthly labs and periodic scans and my medication is delivered by timed doses each month, this means I really can’t be away from home for more than a few weeks for the foreseeable future, and when I come off my anti-seizure drug this winter, I won’t be able to drive for three months! It’s hard to see a return to normal; this is a new normal.

Speaking of the new normal, I’ve been having trouble wrapping my head around how to live my life now and how to make decisions now. I am in that in-between place where I don’t know what going forward looks like. In my immediate future, I have Portugal, but after that??? 

I had started accepting that this may be the end, that it may be my last year or so, so I decided to live hard right now and do all the things. But when I got the scan this summer showing me that I didn’t have any active cancer at the moment, suddenly I could see a longer life… a future longer than a year at least, so does that mean I start saving for retirement again? Can I even entertain the possibility of retiring? All the while, I still need to make it to 5 years…and the odds aren’t quite in my favor, but then again, I’ve always excelled at exceeding the odds and have had good luck trusting the world. Do I stop planning and live now? Or plan just the next year and go big?? Or do I plan to be alive in 10 years? 5 years? 3 years? Do I start my business again? But I’ve also always wanted to write a book, so why not give that a shot when I have time (or maybe not)?

I don’t know friends. I guess I’ll start by going on a long walk.

10 thoughts on “Life Update 8/21

  1. Dear lady, As someone who had experienced the slap in the face of a diagnosis that narrows ones’ choices in how to deal with what time we have left, all I can say is in your mind project yourself a year ahead then five years ahead, ten years, twenty years in meditation visualizing living well and happy and content, knowing that in your heart you accept what path is laid at your feet. Kind of like knowing you have 4,000 feet in elevation to do today on the hike, and seeing that mountain ahead, but concentrating on where you place your feet for the moment so that you can arrive eventually and safely to the top of that mountain. And just go for it and trust, as you have learned to do on trail. And as we know, the trail provides. Hugs!

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  2. Renee – we could have died when you tried to drive my jeep that day! you literally almost rolled us off a cliff. Also, you almost die everyday on the trail. if you have a year left, you are one of the strongest people ever to do it and I will be at your celebration of life – unless, of course I die today in which case I can finally take a break ;D. Walk it off, Renee.

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  3. Oh my, Renee. Your strength & tenacity developed as a hiker, are proving useful in your off-trail life now. My heart goes out to you: all the doctor visits, the various treatment plans, self-administered shots, the frailer bones….it’s a lot to carry. If only life had an “ultralight” version that we could download into our bodies instead!

    I’ve had some heart issues as well as vertigo symptoms, that have definitely changed how/when/if I get to spend time on a trail. It’s humbling to learn to accept life’s realities, but I appreciate your upbeat outlook & positive vibes.

    Abrazos, ~ Lynne

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  4. Dear Renee,

    I say, keep on planning!!! It’s therapy for the soul. Aim to survive one year…then when you make it, visualize three years! Treat your body gently, girl 🩵.

    Hugs from Florence, Marsha.

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  5. I read Psalm 146 today and thought of you. Look in the Table of Contents in the Bible we gave you and find the book of Psalms and read chapter 146. I pray you are comforted by the words of that psalm.

    Love, Aunt Dee

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